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Caring for a loved one with a malignant fungating wound
Sebastian Probst1, Anne Arber, Andreas Trojan
1Department of Health, Zurich University of Applied Sciences, Winterthur, Switzerland. prob@zhaw.ch
Summary
Caring for a loved one with a fungating breast wound is challenging, causing distress. Integrated palliative wound care strategies are needed to support patients and carers holistically.
Area of Science:
- Oncology Nursing
- Palliative Care
- Qualitative Research
Background:
- Malignant fungating wounds present significant challenges for patients and their carers.
- Caring for these wounds causes extreme physical and psychological distress.
Purpose of the Study:
- To explore the lived experiences of carers managing fungating breast wounds.
- To understand the challenges and needs of informal carers in advanced cancer care.
Main Methods:
- Heideggerian hermeneutic phenomenology framework.
- Semi-structured interviews with seven carers.
- Exploration of carer experiences from January to November 2009.
Main Results:
- Visible cancer and fungating wounds caused shock and suffering for patients and carers.
- Wound management, including odor and discharge, became central to daily life.
- Carers felt isolated, managing wounds without healthcare professional support, highlighting a significant burden.
Conclusions:
- Palliative wound care requires integrated, holistic, and empathic strategies.
- Addressing patients' and carers' psychosocial and emotional needs is crucial.
- Providing practical information for symptom management is essential for effective carer support.
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