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Autism and pediatric practice: toward a medical home

Susan L Hyman1, Jara K Johnson

  • 1Division of Neurodevelopmental and Behavioral Pediatrics, Golisano Children's Hospital, University of Rochester School of Medicine and Dentistry, Box 671, 601 Elmwood Avenue, Rochester, NY 14642, USA. Susan_hyman@urmc.rochester.edu

Journal of Autism and Developmental Disorders
|March 14, 2012
PubMed

Insights

Pediatricians provide essential well-child visits for early autism spectrum disorder (ASD) screening and support. However, families of children with ASD face challenges accessing coordinated Medical Home care and specialized services.

Area of Science:

  • Developmental Pediatrics
  • Autism Spectrum Disorder Research
  • Healthcare Access and Delivery

Background:

  • Pediatricians conduct 11 well-child visits by a child's third birthday, fostering trust and enabling developmental surveillance.
  • Continuous primary care is crucial for monitoring children needing therapy and supporting families.
  • Early screening and surveillance for autism spectrum disorders (ASD) are key components of well-child visits.

Purpose of the Study:

  • To examine the challenges families of children with ASD face in accessing coordinated, continuous, and culturally competent care within a Medical Home model.
  • To compare the reported access to specialty and family-centered care for children with ASD versus other children with special health care needs.
  • To identify barriers and potential solutions for improving Medical Home care delivery for all children with ASD.

Main Methods:

  • Analysis of data from well-child visits and family reports regarding healthcare experiences.
  • Comparative assessment of healthcare access metrics for children with ASD and other special health care needs.
  • Review of existing frameworks for primary care delivery and family support.

Main Results:

  • Families of children with ASD are less likely to report receiving care in a Medical Home compared to general pediatric populations.
  • These families report significantly less access to essential specialty and family-focused care services.
  • Significant challenges exist in implementing comprehensive Medical Home care for children with ASD.

Conclusions:

  • There is a critical need to improve the integration and accessibility of Medical Home care for children with autism spectrum disorders.
  • Addressing disparities in access to specialty and family support services is paramount for families of children with ASD.
  • Systemic solutions are required to ensure all children with ASD benefit from coordinated, continuous, and high-quality primary care.

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