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Updated: May 23, 2026

Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
Adult congenital heart disease: new challenges
Insights
Lifelong surveillance is crucial for adults with congenital heart disease (CHD) due to potential complications. Optimizing care transitions and expanding research are key to managing this growing population.
Area of Science:
- Cardiology
- Adult Congenital Heart Disease (ACHD) care
Background:
- Advances in medical and surgical care have significantly increased survival rates for patients with congenital heart disease (CHD).
- The aging CHD population presents unique challenges, including residua, sequelae, and long-term complications.
Discussion:
- Optimizing the transition from pediatric to adult cardiology is essential to prevent loss to follow-up.
- A shortage of specialized adult cardiologists necessitates increased training and focus on this subspecialty.
- Further research is needed to understand and manage long-term complications and comorbidities in adults with CHD.
Key Insights:
- Lifelong surveillance is critical for adults with CHD.
- Addressing the transition of care and ensuring adequate specialist numbers are immediate priorities.
- Expanding knowledge on pregnancy risks and management in women with CHD is vital.
Outlook:
- Future efforts should focus on improving employability and insurability for adults with CHD.
- Continued research into prevention and treatment of long-term complications will enhance quality of life.
- Developing comprehensive lifelong care models for the growing ACHD population is paramount.
Abstract:
Improved surgical care from the last five decades, together with the advances in medical management, led to a remarkable increase of survival of patients with congenital heart disease (CHD). However, aging of the CHD population brings new challenges. Given that many patients with CHD are prone to residua and sequelae, life-long surveillance is essential. Therefore, the first of many challenges is to optimize the transition of patients with CHD from pediatric to adult cardiology to prevent lost to follow-up, and to ensure that there are enough specialized adult cardiologists to take care of this expanding patient population. Another important challenge is the expansion of knowledge on long-term complications and comorbidity in these patients. Increased efforts are needed to gain further understanding on how to prevent and treat these. Furthermore, as patients reach the reproductive age, family planning becomes more important and research on the risks and management of pregnancy should be further extended. Finally, to improve the well-being and social life of adults with CHD efforts should be made to improve employability and insurability.
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