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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
A journey towards hospice care
Dinesh Chandra Goswami1, Mandira Sarma
1Guwahati Pain and Palliative Care Society, Uzan Bazar, Guwahati, Assam, India. goswamidcg@gmail.com
Journal of Pain & Palliative Care Pharmacotherapy
|March 28, 2012
Summary
Providing continuous palliative care that addresses information needs is crucial for patients and families. Including primary physicians ensures effective management and support during serious illness.
Area of Science:
- Palliative Care Medicine
- Oncology
- Patient Support
Background:
- Effective palliative care is essential for managing serious illnesses.
- Information needs are a key factor in successful patient coping.
- Continuity of care aids in pain and distress relief.
Purpose of the Study:
- To highlight the importance of continuous palliative care.
- To emphasize the role of information needs in patient well-being.
- To underscore the significance of primary physician involvement.
Main Methods:
- Qualitative narrative analysis from a family member's perspective.
- Case study from a continuity of cancer care workshop.
- Exploration of patient and family experiences in hospice care.
Main Results:
- Continuous palliative care significantly aids in coping with illness.
- Relief from pain and distress is enhanced through comprehensive support.
- Inclusion of the primary physician is vital for effective care management.
- Hospice teams provide crucial support for end-of-life adjustment.
Conclusions:
- A holistic and continuous approach to palliative care is paramount.
- Addressing patient and family information needs improves outcomes.
- Integrated care teams, including primary physicians, optimize palliative support.
- Gratitude expressed by families highlights the profound impact of supportive end-of-life care.
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