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Updated: May 23, 2026

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
Universal newborn screening: knowledge, attitudes, and satisfaction among public health professionals
Laurie Dunn1, Katherine Gordon, Julia Sein
1Department of Pediatrics, University of Miami Miller School of Medicine, Miami, FL, USA.
Pediatric leaders in Florida express dissatisfaction with the newborn screening (NBS) system, citing concerns about information access and timely results. Improvements are needed in medical education, clinical care, and health policy.
Area of Science:
- Public Health
- Pediatrics
- Health Systems
Background:
- The newborn screening (NBS) system is crucial for early detection of congenital disorders.
- Effective communication regarding NBS results is vital for timely intervention and parental understanding.
Purpose of the Study:
- To assess knowledge, attitudes, and satisfaction with the NBS system among Florida pediatric public health leaders.
- To identify areas for improvement in NBS information dissemination.
Main Methods:
- Online surveys and telephone interviews were conducted with 10 county medical directors overseeing NBS.
- The study examined knowledge of NBS, views on information access for providers and parents, and recommendations for system enhancement.
Main Results:
- 80% of providers expressed concern over inadequate NBS information.
- 30% reported NBS results taking over 14 days; 80% worried about parents receiving insufficient information.
- No provider felt confident assessing parental understanding of positive NBS results.
Conclusions:
- Significant dissatisfaction and confusion exist regarding the NBS system.
- Enhancements are required in medical education, clinical practice, health policy, and information systems to address identified gaps.
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