Related Experiment Video
Updated: May 23, 2026
08:01
Biobank for Translational Medicine: Standard Operating Procedures for Optimal Sample Management
Published on: November 30, 2022
Medical research data-sharing: the 'public good' and vulnerable groups
Shawn H E Harmon1, Kuan-Hsun Chen
1School of Law, University of Edinburgh. shawn.harmon@ed.ac.uk
Medical Law Review
|April 14, 2012
Summary
Governments must prioritize the elderly by integrating their realities into bioscience research. This paper presents age-based arguments for enhanced data-sharing to improve public health and healthcare systems for older adults.
Area of Science:
- Biomedical research
- Gerontology
- Genomics
Background:
- Societal obligation to support the elderly.
- The "century of biology" necessitates biosciences addressing elderly needs and realities.
- Current biomedical research and healthcare systems require improved data-sharing.
Purpose of the Study:
- Advocate for increased and improved data-sharing in biomedical research.
- Present age-based arguments to reshape the research environment for public good.
- Ensure biosciences reflect the reality of the elderly population.
Main Methods:
- Review of arguments for data-sharing in biomedical research.
- Analysis of the impact of population genomics research models.
- Development of age-based arguments for enhanced data-sharing.
Main Results:
- Identified the critical need for data-sharing in population genomics.
- Formulated three age-based arguments supporting increased data-sharing.
- Highlighted the potential of data-sharing to improve public health outcomes for the elderly.
Conclusions:
- Increased and improved data-sharing is essential for biomedical progress.
- Policy and funding structures should be reshaped to encourage data-sharing.
- Addressing the needs and realities of the elderly is a moral imperative for governments and biosciences.
Related Concept Videos
01:23Ethical Standards II
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy and...
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy and...
01:56Ethics in Research
Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
01:25Ethical Standards I
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
01:22Ethics and Bioethics
Ethics is a philosophical study of moral actions. Ethics attempts to determine what is valuable for individuals and society. It examines the rational justification of moral judgments and analyzes what is morally just, fair, and right. Bioethics is a sub-discipline of applied ethics that analyzes the philosophical, social, and legal issues in life sciences and medicine. Ethical theories serve as a foundation for decision-making and represent the viewpoints from which people seek direction. They...
01:15Bioavailability Study Design: Healthy Subjects Versus Patients
Bioavailability studies are essential for evaluating a drug's therapeutic efficacy and understanding its absorption patterns under various physiological conditions. Conducting such studies on target patient populations provides more relevant data by simulating real-world disease states. However, practical challenges often necessitate the use of young, healthy adult volunteers as study subjects.Patients may exhibit altered drug absorption patterns due to the effects of the disease itself,...
01:23Types of Biopharmaceutical Studies: Controlled and Non-Controlled Approaches
Biopharmaceutical studies constitute a vital field aiming to enhance drug delivery methods and refine therapeutic approaches, drawing upon diverse interdisciplinary knowledge. In research methodologies, the choice between controlled and non-controlled studies significantly influences the study's reliability and accuracy.
Non-controlled studies, commonly employed for initial exploration, lack a control group, rendering them susceptible to biases and external influences. In contrast, controlled...
Non-controlled studies, commonly employed for initial exploration, lack a control group, rendering them susceptible to biases and external influences. In contrast, controlled...