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Related Experiment Videos

Neonatal ethics: development of a consultative group.

M J Edens1, F D Eyler, J T Wagner

  • 1Shands Teaching Hospital, Gainesville, FL.

Pediatrics
|December 1, 1990
PubMed
Summary

A neonatal ethics advisory group provided valuable consultations for complex cases, primarily involving treatment decisions for infants with congenital anomalies. The group

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Area of Science:

  • Medical Ethics
  • Neonatalogy
  • Pediatric Consultation

Background:

  • Neonatal ethics advisory groups are crucial in tertiary care settings for navigating complex patient care decisions.
  • Ethical consultations in neonatal intensive care units (NICUs) address challenging dilemmas faced by healthcare teams.

Purpose of the Study:

  • To review the experience of a neonatal ethics advisory group in a tertiary care setting.
  • To identify the most valuable aspects contributing to the development of this consultative group.
  • To analyze the characteristics of neonatal patients requiring ethical consultation and the outcomes.

Main Methods:

  • Retrospective review of consultations requested for 31 neonatal patients from August 1984 to December 1988.
  • Analysis of patient demographics, principal diagnoses (including congenital anomalies), and reasons for consultation.
Keywords:
Death and EuthanasiaEmpirical ApproachProfessional Patient RelationshipShands Hosptial (Gainesville, FL)University of Florida

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  • Evaluation of the group's consensus and recommendations in relation to healthcare team decisions.

    • Main Results:

    • Consultations primarily concerned decisions about withdrawing or withholding treatment for neonates.
    • Congenital anomalies were the principal diagnosis for 64.7% of the infants reviewed.
    • The group's consensus supported the healthcare team's decision in 22 out of 31 consultations; others required more information or communication.

    Conclusions:

    • The neonatal ethics advisory group validated the need for a forum to discuss complex ethical issues in neonatal care.
    • The group's experience highlights its value in supporting healthcare teams facing difficult ethical decisions.
    • Understanding patient characteristics and consultation reasons informs the group's development and effectiveness.