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Reliability of an interactive computer program for advance care planning.

Jane R Schubart¹, Benjamin H Levi, Fabian Camacho

¹Department of Surgery, College of Medicine, The Pennsylvania State University, Hershey, Pennsylvania 17033, USA. jschubart@hmc.psu.edu

Journal of Palliative Medicine

|April 20, 2012

Summary

This summary is machine-generated.

The Making Your Wishes Known (MYWK) program helps create advance directives (ADs). While MYWK ensures general wishes and quality-of-life values remain consistent, specific treatment wishes may vary over time.

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Area of Science:

Medical Ethics
Health Informatics
Patient Autonomy

Background:

Advance directives (ADs) are crucial for medical decision-making but have low completion rates.
Interactive computer programs can facilitate advance care planning and AD completion.

Purpose of the Study:

To assess the reliability of an interactive computer program, Making Your Wishes Known (MYWK), in generating advance directives (ADs).
To determine if ADs generated by MYWK consistently reflect an individual's values and preferences over time.

Main Methods:

Participants (≥30 years old) completed the MYWK program twice, 4-6 weeks apart.
Reliability was assessed for General Wishes, Specific Wishes, and Quality-of-Life (QoL) values using internal consistency and test-retest measures.

Main Results:

High internal consistency was found for Specific Wishes and QoL scales (KR-20=0.83-0.95 and 0.86-0.89).
Test-retest reliability was perfect for General Wishes (κ=1) and high for QoL (r=0.83).
Specific Wishes showed lower test-retest reliability (r=0.57).

Conclusions:

The MYWK program reliably generates ADs reflecting General Wishes and QoL values over time.
Consistency of Specific Wishes in ADs generated by MYWK requires further investigation.