Related Experiment Video
Updated: May 22, 2026

A Computer-Based Platform for Aiding Clinicians in Eating Disorder Analysis and Diagnosis
Published on: May 10, 2022
Disclosure of diagnosis: to tell or not to tell?
Oana de Vinck-Baroody1, Carol Weitzman, Martha Vibbert
1Department of Pediatrics, Yale University School of Medicine, New Haven, CT, USA.
Insights
Disclosing hepatitis B (HBeAg)-positive status to an 8-year-old requires careful consideration of the child's developmental stage and potential social impact. Balancing the child's right to know with family concerns is crucial for effective management.
Area of Science:
- Pediatric Hepatology
- Child Psychology
- Public Health
Background:
- A case study of an 8-year-old boy, adopted and diagnosed with hepatitis B (HBeAg)-positive, presents a dilemma regarding disclosure of his condition.
- The child is asymptomatic and adheres to universal precautions, while his family navigates disclosure concerns with his healthcare providers.
Observation:
- The child exhibits academic and social challenges, including difficulties with reading, math, making friends, and interpreting social cues.
- Observed behaviors include distractibility, impulsivity, and fidgeting, impacting classroom and social interactions.
Findings:
- The hepatologist advocates for immediate disclosure, emphasizing the child's right to know and the importance of protecting others.
- The mother expresses concerns about the child's ability to manage the information and the potential breach of trust if disclosure is delayed.
Implications:
- This case highlights the complex ethical and psychological considerations in pediatric chronic illness disclosure.
- Recommendations for the family should address communication strategies, psychosocial support, and educational interventions tailored to the child's needs.
Case:
Jimmy is an 8-year-old boy with hepatitis B, e antigen (HBeAg)-positive, HIV and hepatitis C negative, who was adopted from Vietnam when he was 5 years and has been followed in your primary care practice since that time. Before adoption, he lived in an orphanage, where he was placed soon after birth. Jimmy currently lives with his adoptive mother and grandparents. His adoptive father has amyotrophic lateral sclerosis and recently moved to a nursing home due to a need for more intensive care. Jimmy continues to see him regularly.Jimmy's mother presents today upset about a recent encounter with his hepatologist. During this visit, Jimmy's doctor was insistent that Jimmy should be told about his illness immediately. He felt that Jimmy "had a right to know" and that it was important for the protection of other children. Jimmy's family practices universal precautions and Jimmy is compliant with these safety measures. Jimmy's mother has chosen not to share his diagnosis with the school and in addition has not felt the time was right to disclose the diagnosis to Jimmy. He is asymptomatic, takes no medications, and is followed yearly by a hepatologist. His mother is concerned that Jimmy would have difficulty managing this information and maintaining a "secret." However, she also worries that he may feel his trust has been violated if she delays telling him.Jimmy is currently 8 years old, in second grade, and is struggling academically with math and reading. Socially, he is reported to have difficulty making friends and reading social cues. For example, he displays inappropriate boundaries, often standing too close or touching others, which has resulted in children avoiding him. During your annual visit, Jimmy presented as a friendly and engaging boy. He maintained conversation about school and some of his interests, but he was often distractible, impulsive, at times grabbing things, and fidgety, frequently standing up and then sitting back down. Jimmy's mother reports that this behavior is similar to what he exhibits in the classroom. He is currently receiving English as a Second Language services and is enrolled in a weekly "lunch bunch." What advice would you give the family?
More Related Videos
Related Concept Videos
Ethical Standards II
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy and...
Documentation of Nursing Diagnosis
In some settings, data-driven computerized decision support systems are in place, allowing for more accurate nursing diagnoses. The database within one of these systems includes diagnostic labels defining characteristics, activities, and indicators for nursing. A nurse enters assessment...
Nursing Ethical Principles II
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's cancer...
Diagnostic and Statistical Manual of Mental Disorders (DSM)
Introduction to Documentation and Reporting
Nursing documentation records essential information and details regarding a patient's care and treatment in written or electronic form. It is a critical aspect of nursing practice that involves documenting assessments, interventions, outcomes, and other relevant details about a patient's health status.
Documentation maps the patient's health journey by creating a comprehensive and precise...
Ethics and Bioethics
