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Satisfaction with genetic counseling: dimensions and measurement
S Shiloh1, O Avdor, R M Goodman
1Institute for Child Development, Chaim Sheba Medical Center, Tel Hashomer, Israel.
American Journal of Medical Genetics
|December 1, 1990
Summary
Patient satisfaction in genetic counseling is lower than in general pediatric care. Satisfaction with information content, and affective and procedural aspects, are key drivers for genetic counseling clients.
Area of Science:
- Medical Genetics
- Health Services Research
- Patient Experience
Background:
- Patient satisfaction is a critical metric for healthcare quality, yet it remains under-researched within genetic counseling services.
- Understanding patient satisfaction is essential for improving the delivery and effectiveness of genetic counseling.
- Previous research has not adequately explored the specific dimensions and determinants of satisfaction in genetic counseling.
Purpose of the Study:
- To investigate and quantify patient satisfaction within a genetic counseling setting.
- To identify the key dimensions (instrumental, affective, procedural) of satisfaction with genetic counseling.
- To compare satisfaction levels between genetic counseling clients and a control group receiving pediatric outpatient care.
Main Methods:
- A 32-item questionnaire was developed to assess patient satisfaction.
- The questionnaire was administered to 76 clients at a genetic counseling center.
- A control group of 56 parents from a pediatric outpatient clinic completed the same questionnaire for comparison.
Main Results:
- Factor analysis identified three primary dimensions of satisfaction: instrumental, affective, and procedural.
- Overall satisfaction levels were significantly lower among genetic counseling clients compared to the control group.
- Satisfaction with the content of information provided was the most crucial factor influencing overall satisfaction in both groups.
Conclusions:
- Genetic counseling satisfaction is influenced by instrumental, affective, and procedural elements, with lower overall scores compared to general pediatric care.
- The quality of information content is paramount for patient satisfaction in genetic counseling.
- Affective and procedural aspects play a more significant role in determining satisfaction for genetic counseling clients than for the control group, highlighting areas for service improvement.