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A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
Published on: July 31, 2017
Sharing heterogeneous data: the national database for autism research.
Dan Hall1, Michael F Huerta, Matthew J McAuliffe
1OMNITEC Solutions, Inc., 6001 Executive Boulevard, Suite 7161, Rockville, MD 20892-9640, USA. halldan@mail.nih.gov
The National Database for Autism Research (NDAR) provides a secure platform for sharing autism spectrum disorder data. It aims to accelerate scientific discovery by making data from over 25,000 participants accessible to researchers.
Area of Science:
- Neuroscience
- Genetics
- Developmental Psychology
Background:
- Autism spectrum disorder (ASD) research requires large, diverse datasets for robust analysis.
- Data silos and lack of standardized sharing hinder scientific progress in understanding ASD.
- The need for a centralized, secure repository for ASD research data is critical.
Purpose of the Study:
- To establish and maintain a secure data repository for autism spectrum disorder research.
- To facilitate data sharing and collaboration among ASD investigators.
- To accelerate scientific discovery through harmonized data and accessible research results.
Main Methods:
- Development of a secure online research data repository (NDAR).
- Implementation of data harmonization protocols for diverse datasets.
- Establishment of a portal for qualified investigators to access de-identified data.
Main Results:
- NDAR hosts data from over 25,000 research participants.
- A secure portal provides access to de-identified ASD research data for qualified investigators.
- Summary information about available data is publicly accessible.
Conclusions:
- The NDAR serves as a vital resource for the autism research community.
- Facilitating data sharing through NDAR promotes collaborative and accelerated scientific discovery in ASD.
- The repository supports the advancement of knowledge regarding autism spectrum disorder.
