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Challenges in the management of pediatric central venous access devices in the community
Elaine Wallace1, Marie Twomey, Maeve O'Reilly
1Department of Palliative Medicine, Our Lady's Hospital for Sick Children, Crumlin, Dublin, Ireland.
Insights
General practitioners (GPs) managing children with central venous access devices (CVADs) in the community face significant challenges due to lack of education and support. Enhanced training and resources are crucial for effective pediatric CVAD care.
Area of Science:
- Pediatric critical care
- General practice
- Healthcare management
Background:
- Central venous access devices (CVADs) are vital for critically ill children but pose management challenges in community settings.
- General practitioners (GPs) play a role in the care of these children, yet their experience with CVADs is often limited.
Purpose of the Study:
- To assess the experiences and challenges faced by general practitioners (GPs) in managing children with central venous access devices (CVADs) in a community setting.
- To identify areas for improvement in education, support, and communication for GPs involved in pediatric CVAD care.
Main Methods:
- A questionnaire was distributed to 44 general practitioners (GPs) who were caring for children with central venous access devices (CVADs).
- The study analyzed responses from 20 GPs regarding the reasons for CVAD use, their education, awareness of guidelines, perceived responsibilities, and identified challenges.
Main Results:
- Most responding GPs lacked formal education in CVAD management and were unaware of existing guidelines.
- GPs identified lack of education, line management difficulties, infection risk, infrequent exposure, and poor communication as key challenges.
- Responsibility for CVAD care was shared among hospital teams, parents, GPs, and community nurses.
Conclusions:
- General practitioners (GPs) require further education and enhanced support systems to effectively manage children with central venous access devices (CVADs) in the community.
- Improved communication and resources are essential to address the identified challenges and ensure optimal care, especially in end-of-life situations.
Abstract:
Central venous access devices (CVADs) play an essential role in the care of critically ill children. Significant challenges exist for teams in managing CVADs particularly in a community setting. The authors aimed to assess the experience of general practitioners (GPs) caring for children with CVADs. From 200 CVADs inserted in a pediatric hospital in 2009, 50 patients were randomly selected and 44 GPs were forwarded a questionnaire. Twenty (46%) GPs responded. The main reasons (n = 22) for using CVADs were medication administration (n = 11), nutrition (n = 6), and blood sampling (n = 5). Thirteen (65%) GPs had no education in CVAD management and 14 (70%) were unaware of existing guidelines. Those identified by GPs as having primary responsibility for care of CVADs in the community included hospital/pediatric teams (n = 9), parents (n = 3), GPs (n = 2), public health nurses (n = 1), and palliative care ("home care") teams (n = 1). The main challenges (n = 15) identified by GPs were lack of education (n = 4), line management difficulties (n = 3), infection risk (n = 3), infrequent exposure to CVADs (n = 3), and poor communication (n = 1). GPs felt that these challenges could be addressed through: education (n = 8), increased manpower and community support (n = 1), and improved communication (n = 1). This study highlights the inconsistency and challenges for GPs surrounding CVAD use in children. Further education and support is necessary to assist GPs in their use particularly when providing end-of-life care for children in the community.
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