Workshop report: developing a pediatric inflammatory bowel diseases network and data platform in Canada

Area of Science:

• Pediatric Gastroenterology
• Health Services Research
• Biomedical Research Infrastructure

Background:

• Pediatric inflammatory bowel diseases (IBD) require dedicated research infrastructure in Canada.
• Existing research efforts need better coordination and data sharing capabilities.
• A national network is essential for advancing IBD research and patient care.

Purpose of the Study:

• To gather input from the Canadian pediatric IBD research community.
• To develop a research funding opportunity for a national pediatric IBD network and data platform.
• To identify key components for a successful network, including scientific goals, infrastructure, and governance.

Main Methods:

• A national workshop involving leaders in Canadian pediatric IBD research.
• Collaborative discussions to define network objectives and requirements.
• Input collection on scientific priorities, infrastructure needs, and governance models.

Main Results:

• Consensus on the need for a Canadian pediatric IBD network and data platform.
• Identification of essential scientific goals and research priorities.
• Outline of required infrastructure and governance structures for network implementation.

Conclusions:

• A coordinated national approach is vital for advancing pediatric IBD research in Canada.
• The workshop successfully laid the groundwork for a future research network and data platform.
• Securing funding and establishing robust governance are critical next steps for network success.