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The chronically critically ill patient: pediatric considerations
Stacey L Peterson-Carmichael1, Ira M Cheifetz
1Infant Pulmonary Function Testing Laboratory, the Divisions of Pediatric Critical Care Medicine, Duke University Health System, Durham, North Carolina 27710, USA.
Insights
A growing population of chronically ill infants and children requires specialized medical and psychosocial support. This review highlights their unique needs and the necessity for increased resources in pediatric chronic illness care.
Area of Science:
- Pediatric Healthcare
- Chronic Illness Management
- Child Development
Background:
- A distinct population of infants and children with chronic illnesses exists, encompassing those who are critically ill, ventilator-dependent, or medically fragile.
- These children face heightened risks for physical, developmental, behavioral, and emotional challenges.
- Their healthcare requirements exceed those typically seen in general pediatric or adult populations.
Purpose of the Study:
- To define the population of infants and children with chronic healthcare needs.
- To review the specific management and psychosocial needs of this subgroup.
- To discuss trends, special requirements, and outcomes for pediatric chronic illness.
Main Methods:
- Literature review focusing on chronically ill pediatric populations.
- Analysis of trends in pediatric chronic illness over time.
- Examination of management strategies and psychosocial support.
Main Results:
- The number of pediatric patients with chronic illnesses is increasing.
- This population exhibits unique and complex healthcare needs.
- Current resources may be insufficient to meet the growing demand.
Conclusions:
- There is a clear and growing need for specialized care and increased resources for infants and children with chronic illnesses.
- Addressing the management and psychosocial needs of this group is critical.
- Further focus on this subgroup is essential for improving outcomes.
Abstract:
Whether defined as chronically critically ill, long-term mechanical ventilator dependent (or otherwise chronically medically supported), or medically fragile, a population of infants and children with chronic illness clearly exists. Infants and children with chronic healthcare needs are at an increased risk for physical, developmental, behavioral, and/or emotional conditions and generally require healthcare services of a type or amount beyond that of a general pediatric or adult population. This review will focus on the specific management and psychosocial needs associated with the healthcare of this subgroup of infants and children with chronic illness. Attention will be paid to defining the population, describing trends over time, reviewing their special needs, and discussing outcomes. Increased focus and an increasing quantity of resources for this subgroup of infants and children are needed, as the number of such pediatric patients continues to grow.
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