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Validity and reliability of the Korean version of the pediatric quality of life ESRD module

Ki-Soo Park1, Min Hyun Cho, Il Soo Ha

  • 1Department of Preventive Medicine and Institute of Health Sciences, Gyeongsang National University Hospital, 816-15 Jinjudae-ro, Jinju 660-751, South Korea.

Health and Quality of Life Outcomes
|June 8, 2012
PubMed

Insights

This study validated the Korean version of a quality of life tool for children with end-stage renal disease. The PedsQL 3.0 End-Stage Renal Disease Module is a feasible and valid measure for assessing health-related quality of life in these pediatric patients.

Area of Science:

  • Pediatric Nephrology
  • Health Outcomes Research
  • Quality of Life Assessment

Background:

  • Health-related quality of life (HRQoL) is crucial for children with end-stage renal disease (ESRD) and their families, often presenting lifelong challenges.
  • Pediatric ESRD requires long-term management, including dialysis and renal transplantation, significantly impacting patients' well-being.

Purpose of the Study:

  • To validate the Korean version of the PedsQL 3.0 End-Stage Renal Disease Module for assessing HRQoL in Korean pediatric patients.
  • To evaluate the feasibility and psychometric properties of a disease-specific HRQoL instrument for children with ESRD.

Main Methods:

  • A cross-sectional study involving 92 pediatric patients (aged 2-18 years) with ESRD undergoing renal replacement therapy across four Korean teaching hospitals.
  • Validation of the Korean PedsQL 3.0 ESRD Module against the PedsQL 4.0 Generic Core Scales using parent proxy-reports and child self-reports.
  • Assessment of response rates, missing values, face validity, feasibility, floor/ceiling effects, and construct validity.

Main Results:

  • The Korean PedsQL 3.0 ESRD Module demonstrated acceptable feasibility, with minimal missing values and good face validity.
  • Validation analyses indicated acceptable floor and ceiling effects and satisfactory construct validity when compared to the generic PedsQL 4.0.
  • The module was well-accepted by both parents and children for reporting HRQoL.

Conclusions:

  • The PedsQL 3.0 End-Stage Renal Disease Module is a potentially valuable, disease-specific tool for evaluating HRQoL in Korean children with ESRD.
  • Further research with larger, longitudinal studies is recommended to confirm the long-term utility of this instrument.
Abstract

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