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The effectiveness of self-care support interventions for children and young people with long-term conditions: a
1School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK. sue.kirk@manchester.ac.uk
Insights
Effective self-care programs for children with chronic conditions like asthma, cystic fibrosis, and diabetes should target young people directly. Interventions using e-health or group methods in community settings show strong evidence of success.
Area of Science:
- Pediatric Healthcare
- Chronic Disease Management
- Health Psychology
Background:
- Children's health policy emphasizes self-care programs, but evidence for their development is limited.
- A review of existing research is needed to guide the creation of effective self-care support interventions for pediatric chronic conditions.
Purpose of the Study:
- To systematically review the effectiveness of self-care support interventions for children and young people with asthma, cystic fibrosis, and diabetes.
- To identify key characteristics of effective interventions and inform future program development.
Main Methods:
- Systematic literature search across multiple electronic databases and reference lists.
- Independent assessment of retrieved studies against quality and eligibility criteria by two reviewers.
- Narrative synthesis of findings on health status, psycho-social well-being, knowledge, service use, and satisfaction.
Main Results:
- 15 studies were included after screening 4261 papers.
- Interventions targeting children/young people, utilizing e-health or group-based methods, and delivered in community settings demonstrated strong effectiveness.
- Interventions focusing solely on parents or exclusively in hospital settings showed no evidence of effectiveness.
Conclusions:
- Evidence supports the development of self-care support programs utilizing e-health or group-based methods delivered in community settings for children with chronic conditions.
- Future research should focus on well-designed, feasible trials that involve both children and parents in intervention development for real-world application.
Abstract:
Children's health policy has highlighted the need to develop self-care programmes. However, there is a lack of evidence on which to base the development of such programmes. This paper reviews the published research on the effectiveness of self-care support interventions for children and young people with asthma, cystic fibrosis and diabetes. A systematic search was conducted of a range of electronic databases, supplemented by searching the reference lists of retrieved papers and published reviews. Retrieved studies were assessed against quality and eligibility criteria by two independent reviewers. The results were narratively synthesized to examine the effectiveness of self-care support interventions on health status, psycho-social well-being, condition-related knowledge, health service use and participant satisfaction. The search strategy identified 4261 papers which were screened against the review inclusion criteria. A total of 194 papers were assessed as being potentially eligible for inclusion with 15 papers being judged as adequate to include in the review. There is strong evidence of the effectiveness of interventions that target children/young people; use e-health or group-based methods; that are delivered in community settings. There is no evidence that interventions that focus on parents alone or are delivered only in hospital settings are effective. While there is some evidence to inform the development of self-care support programmes, there is a need for well-designed trials of interventions that are feasible to transfer into real-life settings and which involve parents and children in their development.
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Assessment