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Pediatric palliative care: an assessment of physicians' confidence in skills, desire for training, and willingness to refer for end-of-life care.

The American journal of hospice & palliative care·2008

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Parents' perceptions of a pediatric palliative program.

M Joan Sheetz¹, Mary-Ann Sontag Bowman

¹Rainbow Kids Palliative Care Program, Primary Children's Medical Center, Salt Lake City, UT, USA.

The American Journal of Hospice & Palliative Care

|June 15, 2012

Summary

Parents reported high satisfaction with pediatric palliative care services, noting effective emotional support, communication, and symptom management for their children. This study highlights key elements of successful pediatric palliative care programs.

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Area of Science:

Palliative Care
Pediatric Healthcare
Family Support Services

Background:

Limited data exists on family satisfaction with pediatric palliative care.
Understanding family perceptions is crucial for program development and identifying patient needs.
Pediatric palliative care aims to improve quality of life for children with serious illnesses.

Purpose of the Study:

To assess parental perceptions of key pediatric palliative care elements provided by Rainbow Kids.
To evaluate overall parental satisfaction with the services received.
To contribute to the understanding of family needs in pediatric palliative care.

Main Methods:

A survey tool was developed for the project.
Data collected from 65 parents whose children received services from Rainbow Kids Palliative Care.
Participants' children had died while under the program's care.

Main Results:

Parents reported the Rainbow Kids team provided essential emotional support.
Parents indicated the team effectively assisted with decision-making and communication.
High levels of satisfaction with symptom management and overall services were reported by parents.

Conclusions:

The Rainbow Kids Palliative Care program is perceived by families as successfully delivering key elements of care.
Parental satisfaction is high, suggesting effective support and symptom management.
Findings underscore the importance of family-centered approaches in pediatric palliative care.