Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement

Area of Science:

• Health Services Research
• Comparative Effectiveness Research (CER)

Background:

• Stakeholder engagement is crucial for Comparative Effectiveness Research (CER).
• Current terminology and models for stakeholder engagement in CER are inconsistent.
• Lack of standardized definitions hinders effective collaboration.

Purpose of the Study:

• To define stakeholder and stakeholder engagement within the context of CER.
• To present a conceptual model for involving stakeholders throughout the CER process.
• To establish a framework for consistent and effective stakeholder participation in CER.

Main Methods:

• Literature search to identify existing definitions and models.
• Incorporation of expert input and practical experience from a cancer genomics CER center.
• Development of an 'analytic-deliberative' conceptual model.

Main Results:

• Provided clear definitions for 'stakeholder' and 'stakeholder engagement' relevant to CER.
• Introduced an 'analytic-deliberative' conceptual model detailing inputs, methods, and outputs for stakeholder engagement in CER.
• The model outlines distinct methods for each project stage and includes outcome measures for evaluation.

Conclusions:

• The proposed definitions and model offer a foundational step for standardizing stakeholder engagement in CER.
• Further testing is recommended before broad adoption of the definitions and model.
• The framework is valuable for researchers, funders, and stakeholders involved in CER.