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Updated: May 21, 2026
14:32
Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
WFH: closing the global gap--achieving optimal care.
1World Federation of Hemophilia, Washington, DC 20037-3303, USA. mskinner@wfh.org
Summary
The World Federation of Hemophilia (WFH) strives for Treatment for All with bleeding disorders. New strategies and research are crucial to overcome challenges and improve global care, especially with emerging therapies like gene transfer.
Area of Science:
- Hematology
- Global Health
- Medical Research
Background:
- The World Federation of Hemophilia (WFH) has worked for 50 years to improve care for inherited bleeding disorders.
- Over 6.9 million people worldwide have bleeding disorders, with a significant gap in care between developed and developing nations.
Observation:
- Rapid advances in treatment and research present opportunities to revolutionize care.
- There is a growing demand for evidence-based medicine and cost justification for new treatments.
- Collecting outcome data is critical for sustaining and improving patient care.
Findings:
- Emerging therapies like longer half-life treatments and gene transfer should be prioritized for therapeutic advantages, not just cost-effectiveness.
- Key WFH initiatives include the Global Alliance for Progress (GAP) program and The Cornerstone Initiative for underserved regions.
- Despite progress, many patients remain undiagnosed or undertreated globally.
Implications:
- A renewed strategic focus on research, data collection, and targeted initiatives is essential to achieve "Treatment for All".
- Optimizing treatment adherence, reducing bleeding events, and improving health outcomes, including quality of life, are paramount.
- Addressing historical, present, and future challenges is vital to close the global care gap for individuals with inherited bleeding disorders.
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