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Wisconsin Spine Outcome Study-Pilot: preliminary data.

Basheal M Agrawal1, Nathaniel P Brooks, Daniel K Resnick

  • 1Department of Neurological Surgery, University of Wisconsin Hospital and Clinics, Madison, WI 53792, USA. b.agrawal@neurosurgery.wisc.edu

Neurosurgical Focus
|July 4, 2012
PubMed
Summary
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A diagnosis-based registry effectively collects patient data for lumbar spine disorders. This approach enables comparative effectiveness research to identify optimal treatments based on individual patient characteristics.

Area of Science:

  • Spine Surgery
  • Medical Informatics
  • Health Services Research

Background:

  • Randomized controlled trials for spine disorders present pragmatic challenges.
  • Prospective registry designs offer an alternative for comparative effectiveness research.
  • The Wisconsin Spine Outcome Group utilizes registries for degenerative lumbar disorders.

Purpose of the Study:

  • Establish a Web-based, HIPAA-compliant registry for lumbar disorders (WISPOS-P).
  • Achieve at least 80% compliance in collecting pre- and posttreatment data.
  • Implement a patient registration paradigm for comparative effectiveness research.

Main Methods:

  • Prospective, diagnosis-based registry design.
  • Secure, Internet-based platform for self-entered patient data (pain scales, ODI, SF-36).

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  • Data collection preappointment and at 1 and 3 months postappointment, stratified by physician-assigned diagnosis.

    • Main Results:

    • 90 patients participated; 88 received a diagnosis.
    • Electronic survey completion was associated with younger age and email availability.
    • Major diagnoses included disc disease (32), stenosis (24), and nonsurgical pain (14).

    Conclusions:

    • Diagnosis-based registries are effective for collecting pretreatment data in lumbar disorders.
    • Comparative effectiveness analyses stratified by diagnosis can identify optimal treatments.
    • WISPOS-P demonstrates a viable mechanism for patient participation in outcomes registries.