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Energy conservation for fatigue management in multiple sclerosis: a pilot randomized controlled trial
E Guiomar García Jalón1, Sheila Lennon, Louise Peoples
1Northern Ireland Cerebral Palsy Register, School of Nursing and Midwifery, Queen's University Belfast, Belfast, UK. e.garciajalon@qub.ac.uk
Clinical Rehabilitation
|July 4, 2012
Summary
An energy conservation program is feasible for managing multiple sclerosis fatigue. While welcomed, practical issues like transport affected recruitment, suggesting future research needs adjustments for better patient access and longer follow-up.
Area of Science:
- Neurology
- Rehabilitation Science
- Health Psychology
Background:
- Fatigue significantly impacts individuals with multiple sclerosis (MS).
- Energy conservation strategies offer a potential non-pharmacological approach to managing MS-related fatigue.
- Feasibility studies are crucial for developing effective community-based interventions for chronic conditions.
Purpose of the Study:
- To assess the feasibility of implementing an energy conservation program for individuals with multiple sclerosis experiencing fatigue.
- To compare the energy conservation program with a peer support group intervention.
- To gather patient perspectives on the acceptability and utility of the interventions.
Main Methods:
- A pilot randomized controlled trial was conducted in a community setting.
- Participants with MS reporting fatigue were randomized to either an energy conservation program or a peer support group.
- Both 5-week group interventions were evaluated for recruitment, adherence, and patient-reported outcomes, with qualitative feedback sought post-intervention.
Main Results:
- Recruitment challenges were noted, with 30% declining due to logistical barriers (transport/time).
- Twenty-three patients participated, with a dropout rate of approximately 13%.
- While patients found the energy conservation program useful, some reported difficulties with practice activities; peer support was highly valued.
Conclusions:
- Community-based energy conservation programs are feasible and generally well-received by individuals with multiple sclerosis.
- Future research should address practical barriers to improve recruitment and consider extended follow-up periods.
- Adapting interventions to accommodate patient needs is essential for enhancing participation and effectiveness.
