Development framework for a patient-centered record

Area of Science:

• Health Informatics
• Medical Record Systems
• Patient Engagement

Background:

• Traditional physician-oriented medical records may not fully support patient understanding.
• Patient-centered records offer a promising alternative for improved healthcare delivery.

Purpose of the Study:

• To propose a development framework for patient-centered records.
• To analyze the role of complementary information in patient understanding of clinical situations.
• To identify key elements for a patient-centered record through user requirements and workflow analysis.

Main Methods:

• Conducted a field study of user requirements and medical workflow across multiple healthcare units.
• Developed domain-specific database models at the conceptual level.
• Compared findings with a theoretical approach to validate the framework.

Main Results:

• Identified three core data models: patient-centric, medical personnel-centric, and complementary patient information.
• Developed an open-source prototype demonstrating the feasibility of the patient-centered record model.
• Highlighted the essential role of medical personnel in supplying complementary patient information.

Conclusions:

• The proposed framework provides a viable model for developing patient-centered records.
• Implementation requires active contribution from medical personnel to enrich patient understanding.
• Patient-centered records have the potential to enhance patient engagement and healthcare outcomes.