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Parent perceptions of paediatric oncology services at the Eric Williams Medical Sciences Complex, Trinidad and Tobago

A Lum Lock1, C Bodkyn, Z Ali

  • 1Trinidad and Tobago Health Training Centre, The University of the West Indies, St Augustine, Trinidad and Tobago.

The West Indian Medical Journal
|July 20, 2012
PubMed

Insights

Parents reported high satisfaction with pediatric oncology medical services but highlighted needs for improved appointment systems and psychosocial support for families. Addressing these can enhance overall care for children with cancer.

Area of Science:

  • Pediatric Oncology
  • Health Services Research
  • Patient Satisfaction Studies

Background:

  • Parental experiences are crucial in assessing pediatric oncology services.
  • Understanding parental perceptions informs service improvements.
  • The Eric Williams Medical Sciences Complex (EWMSC) provides pediatric oncology care.

Purpose of the Study:

  • To evaluate parental satisfaction with pediatric oncology services at EWMSC.
  • To identify areas for improvement in patient and family support.

Main Methods:

  • A survey was conducted with parents of children with cancer from October 12-27, 2009.
  • Questionnaires assessed perceptions of medical, physical, and psychosocial resources.
  • Data collection was part of a broader needs assessment project.

Main Results:

  • Parents expressed high satisfaction with free medical and pharmaceutical services.
  • Concerns included a lack of structured appointments and inadequate ward support for young patients.
  • Co-housing of non-oncology patients in the specialty unit was noted.
  • Job and income loss were significant stressors for parents, beyond their child's illness.

Conclusions:

  • While medical needs were met, psychosocial, physical, and educational support for parents require attention.
  • Enhancing the appointment system and patient care assistance is recommended.
  • Addressing parental stressors is vital for comprehensive care.
Abstract

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