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Solidarity, children and research
1Centre for Social Ethics and Policy, School of Law, University of Manchester. Oxford Road Manchester M13 9PL, UK. barry.lyons0@gmail.com
Insights
Child participation in research without direct benefit is ethically complex. Viewing it as an act of solidarity, where children help others, offers a more robust moral justification for their involvement.
Area of Science:
- Bioethics
- Pediatric Research
- Social Psychology
Background:
- Current justifications for children's research participation, especially when lacking direct benefit, are ethically questionable.
- Existing arguments based on best interests, duty, or obligation are unconvincing.
- A new ethical framework is needed to support research involving children.
Purpose of the Study:
- To propose a novel ethical justification for children's participation in research.
- To reframe research participation as an act of solidarity.
- To explore the potential for fostering solidarity as a norm in pediatric research.
Main Methods:
- Philosophical argumentation and ethical analysis.
- Review of existing literature on research ethics and child participation.
- Conceptual development of solidarity as a moral basis.
Main Results:
- Arguments for children's research participation based on best interests or duty are insufficient.
- Research participation can be ethically grounded in solidarity, akin to assisting those less fortunate.
- Children and parents often value altruism and helping others.
Conclusions:
- Viewing research participation as an act of solidarity provides a stronger ethical foundation.
- Encouraging solidarity can shift research participation from an exception to a norm.
- This approach respects children's capacity for empathy and desire to help peers.
Abstract:
While research on children is supported by many professional guidelines, international declarations and domestic legislation, when it is undertaken on children with no possibility of direct benefit it rests on shaky moral foundations. A number of authors have suggested that research enrolment is in the child's best interests, or that they have a moral duty or societal obligation to participate. However, these arguments are unpersuasive. Rather, I will propose in this paper that research participation by children seems most reasonable when considered as an act of solidarity; a form of identification with, and provision of practical assistance to, those who are less well off. This is an articulation of the view that many children, and their parents, seem to take seriously the suffering of others, and wish to assist in advancing other children's wellbeing. Perhaps, by fostering an environment in which children are encouraged to take solidarity seriously, participation in research which holds out substantial hope of benefit to those less well off would come to be perceived as a behavioural norm rather than an exceptional practice.
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