A randomised trial of a remote home support programme for infants with major congenital heart disease

Brian McCrossan1, Gareth Morgan, Brian Grant

  • 1Department of Paediatric Cardiology, Royal Belfast Hospital for Sick Children, Belfast, UK. brianmccrossan@doctors.org.uk

Insights

Tele-homecare using video-conferencing significantly improves clinician confidence and parental satisfaction for infants with congenital heart disease (CHD). This approach reduces healthcare resource use and costs compared to telephone support.

Area of Science:

  • Pediatric Cardiology
  • Digital Health
  • Healthcare Management

Background:

  • Major congenital heart disease (CHD) requires ongoing monitoring and support for infants and their families.
  • Traditional homecare models can be resource-intensive and may present logistical challenges.

Purpose of the Study:

  • To evaluate the sustainability, clinical utility, and acceptability of a tele-homecare program for infants with major CHD.
  • To assess the impact of tele-homecare on healthcare resource utilization.

Main Methods:

  • A randomized controlled trial involving 83 infants with major CHD.
  • Participants were assigned to video-conferencing support, telephone support, or a control group.
  • Remote consultations were conducted regularly, with video-conferences utilizing digital network lines and later broadband connections.

Main Results:

  • Clinicians reported higher confidence in medical decision-making with video-conferencing compared to telephone support (p=0.01).
  • Parents showed significantly higher satisfaction with video-conferencing support (p=0.001).
  • The video-conferencing group experienced a 37% reduction in healthcare resource use and lower hospitalization risk (p<0.001, p=0.006 respectively), with significantly lower direct health service costs (p<0.05).

Conclusions:

  • Tele-medicine home support programs are feasible, sustainable, and effective for families of infants with major CHD.
  • Video-conferencing based home support is superior to telephone consultations, leading to high parental satisfaction.
  • Tele-homecare significantly reduces health service utilization and holds potential for cost reduction.
Abstract

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