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A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
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The health care experiences of the preschool child with autism

Margaret W Bultas1

  • 1St. Louis University, School of Nursing, St. Louis, MO, USA. mbultas@juno.com

Journal of Pediatric Nursing
|August 28, 2012
PubMed

It is known that children with autism spectrum disorder (ASD) visit health care providers (HCPs) more frequently than typically developing peers, and mothers experience barriers in this process. The purpose of this interpretive phenomenological study was to gain a better understanding of a mother's experiences of taking her child with ASD to the HCP. Two themes related to the health care experience of the child surfaced from the study. These themes included feelings that HCPs do not "get" the complexity of caring for the child and marginalization of mothers by the HCP. The need for creation of child-specific profiles emerged from this study.

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