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Experiencing work as a daily challenge: the case of scleroderma
Cindy Mendelson1, Janet L Poole, Saralynn Allaire
1College of Nursing, University of New Mexico, Albuquerque, NM 87131-5688, USA. cfmendelson@salud.unm.edu
Work (Reading, Mass.)
|August 29, 2012
Summary
Individuals with scleroderma (SSc) face daily work challenges. Simple worksite accommodations and flexible scheduling are crucial for enabling them to maintain employment and avoid disability.
Area of Science:
- Rheumatology
- Occupational Health
- Scleroderma Research
Background:
- Scleroderma (SSc) significantly impacts individuals' ability to work.
- Understanding the specific physical and discretionary work challenges faced by SSc patients is limited.
Purpose of the Study:
- To explore the work-related challenges encountered by employed individuals with SSc.
- To identify adaptations that enable individuals with SSc to continue working.
Main Methods:
- A qualitative study involving 32 employed individuals with SSc.
- Data collected through structured interviews.
- Content and thematic analysis to identify key themes.
Main Results:
- Work is a daily challenge for most employees with SSc.
- Key themes include the work environment, career planning, and the role of supportive others.
- Specific challenges and necessary accommodations were identified.
Conclusions:
- Employees with SSc are motivated to find ways to continue working.
- Worksite accommodations and flexible scheduling are critical factors in maintaining employment for individuals with SSc.
- These factors can prevent a transition to disability.
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