[Haemophilia treatment centres in Germany]

Area of Science:

• Hematology
• Public Health
• Healthcare Management

Background:

• Effective hemophilia care requires a sufficient number of specialized centers.
• A reassessment of hemophilia care delivery in Germany was conducted.
• Criteria for center structure and quality were established.

Purpose of the Study:

• To assess the current structure and quality of hemophilia care centers in Germany.
• To categorize centers based on defined criteria and European standards.
• To identify trends and challenges in hemophilia center provision.

Main Methods:

• A questionnaire was developed and distributed to 137 doctors.
• Data from 113 respondents (82%) were analyzed.
• Information from PEI forms (Paul Ehrlich Institut) was integrated.
• Centers were categorized into Comprehensive Care Centres (CCC), Haemophilia Treatment Centres (HTC), and Haemophilia Treatment Regional (HTR).

Main Results:

• 72 hemophilia centers were identified and categorized: 17 CCC, 24 HTC, and 31 HTR.
• A significant number of HTC (32%) and HTR (21%) centers have changed their treatment level.
• 9 centers (12.5%) ceased hemophilia care activities within four years.
• 5404 patients with hemophilia (3047 severe) were reported, with 67% treated in CCC.

Conclusions:

• The current structure of 17 CCC, 24 HTC, and 31 HTR centers appears adequate.
• A concerning trend of centers leaving their designated treatment levels and ceasing care was observed.
• Intensified efforts are needed to maintain hemophilia centers and ensure continued high-quality care.