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[Therapeutic education and internal medicine]
1Collectif interassociatif sur la santé (CISS), 10, Villa Bosquet, 75007 Paris, France. csaout@leciss.org
La Revue De Medecine Interne
|September 25, 2012
Summary
French law reformed patient therapeutic education, highlighting its importance in integrated care pathways for rare diseases. Internists are key to developing new programs, with a pilot for systemic lupus erythematosus underway.
Area of Science:
- Public Health
- Medical Law
Context:
- French Law no. 2009-879 reformed hospital care, introducing specific articles on patient therapeutic education.
- Existing legislative conditions for therapeutic education require re-evaluation in favor of integrated care pathways.
- There is a growing need for structured therapeutic education programs, particularly for rare diseases.
Purpose:
- To advocate for the integration of therapeutic education within broader care pathways.
- To emphasize the crucial role of internists in developing and implementing therapeutic education programs for rare diseases in France.
- To outline the initial steps and future potential for expanding therapeutic education initiatives.
Summary:
- Therapeutic education, a concept gaining renewed attention due to French legislation, is essential for integrated patient care.
- Internists are positioned to lead the development of therapeutic education programs for rare systemic autoimmune diseases.
- A pilot program for systemic lupus erythematosus is in progress, with plans for wider implementation and the creation of programs for other rare diseases.
Impact:
- This initiative aims to improve patient outcomes and management of rare diseases through structured educational interventions.
- Successful implementation could serve as a model for other rare diseases and healthcare systems.
- Key aspects like content, funding, and evaluation need further definition for program sustainability.
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