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Neurosurgical input at pre-natal counselling for parents of babies with Spina bifida
Rebecca Cockayne1, Frances Gibbon, Paul Leach
1University of Wales College of Medicine, Cardiff, UK.
Insights
Prenatal counseling for Spina bifida helps parents prepare for their child's birth and future. Improvements are needed in providing detailed information on urinary catheterization and special care baby unit (SCBU) admissions.
Area of Science:
- Neuroscience
- Maternal-Fetal Medicine
- Pediatric Surgery
Background:
- Prenatal counseling is crucial for parents facing a Spina bifida diagnosis.
- Decisions regarding pregnancy continuation and future care planning are complex.
- Effective counseling supports informed decision-making and preparation.
Purpose of the Study:
- To evaluate the effectiveness of specialist neuro-counseling for Spina bifida.
- To identify areas for improvement in prenatal counseling services.
- To enhance support for parents continuing their pregnancy with a Spina bifida diagnosis.
Main Methods:
- A questionnaire was administered to parents who received prenatal counseling.
- Parents had continued their pregnancy after the counseling session.
- The study assessed parental feedback on the counseling content and delivery.
Main Results:
- Parents found prenatal counseling beneficial for decision-making and preparation.
- Specific areas for improvement included detailed information on urinary catheterization.
- Enhanced information on Special Care Baby Unit (SCBU) admission and a dedicated Spina bifida leaflet were requested.
Conclusions:
- Specialist neuro-counseling is a valuable resource for parents of children with Spina bifida.
- Improving information clarity on specific medical needs enhances parental preparedness.
- Targeted information delivery can optimize the prenatal counseling experience.
Abstract:
Prenatal counselling can be helpful to parents in making a decision with regard to continuation of the pregnancy or to help prepare for the birth and the future life of a child with Spina bifida. We aimed to assess the effectiveness of our specialist neuro counselling sessions and to highlight areas that could be improved upon. This was in the form of a questionnaire given to parents, who had been through the counselling and continued with their pregnancy. The areas highlighted for improvement were more explicit information about urinary catheterisation, the need for admission to the special care baby unit (SCBU) and the need for an information leaflet on Spina bifida.
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