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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Support needs of siblings of people with developmental disabilities
Catherine K Arnold1, Tamar Heller, John Kramer
1University of Illinois at Chicago, Department of Disability and Human Development, 1640 W. Roosevelt Road, Chicago, IL 60608-1336, USA. kkeiling@uic.edu
Abstract:
This qualitative study examines the support needs of adult siblings of people with developmental disabilities. A survey completed by 139 siblings of people with developmental disabilities captured the needs of adult siblings through 2 open-ended questions. A grounded theory approach was used, and the sibling responses anchored the analysis, interpretation of findings, and discussion using the constant comparison method. Eleven core variables and 3 overarching themes emerged. Three overarching themes for sibling support needs include: (a) getting disability-related information, (b) getting support for their caregiving role, and (c) enhancing the formal support system to address sibling needs.
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