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Sampling challenges in nursing home research.

Virginia P Tilden1, Sarah A Thompson, Byron J Gajewski

  • 1College of Nursing, University of Nebraska Medical Center, Omaha, NE 68198-5330, USA.

Journal of the American Medical Directors Association
|October 9, 2012
PubMed
Summary
This summary is machine-generated.

Nursing homes with high staff turnover and more deficiencies are harder to keep in studies. Extra resources are needed to retain these facilities for better end-of-life care research.

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Area of Science:

  • Gerontology
  • Health Services Research
  • Palliative Care

Background:

  • Longitudinal studies in nursing homes face significant challenges in retaining facilities throughout the study duration.
  • On-site data collection in large-scale nursing home research presents particular difficulties for participant retention.

Purpose of the Study:

  • To identify and compare the characteristics of nursing homes that withdrew from a study versus those that completed it.
  • To understand factors influencing nursing home participation and completion in end-of-life care research.

Main Methods:

  • A prospective study enrolled 102 nursing homes across a two-state region to examine end-of-life care.
  • Data collection involved public databases, on-site staff interviews at two time points, and telephone interviews with decedents' family members.
  • The study focused on the relationship between staff communication, teamwork, palliative care practices, and resident outcomes.

Main Results:

  • Seventeen out of 102 nursing homes (16.7%) did not complete the study.
  • Facilities that dropped out had significantly more deficiencies and higher key personnel turnover rates compared to completer facilities.
  • Intensive retention efforts enabled a few high-risk facilities to complete the study.

Conclusions:

  • Nursing homes with high deficiencies and turnover are crucial for improving end-of-life care but pose a significant sampling challenge.
  • Researchers must anticipate and allocate additional resources to maximize the retention of these vital facilities in studies.
  • Strategies to retain facilities with high turnover and deficiencies are essential for robust end-of-life care research.