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Root causes for late presentation of severe neonatal hyperbilirubinaemia in Egypt
I Iskander1, R Gamaleldin, M Kabbani
1Department of Paediatrics, University of Cairo, Cairo, Egypt. imanisk@hotmail.com
Insights
Late presentation of severe neonatal jaundice is common, often due to a lack of discharge examinations and jaundice education. Inexpensive diagnostic tools and phototherapy are urgently needed in healthcare facilities to improve infant care.
Area of Science:
- Neonatal Medicine
- Pediatrics
- Public Health
Background:
- Severe neonatal hyperbilirubinemia (jaundice) poses significant health risks to infants.
- Late presentation to healthcare facilities delays critical treatment for severe jaundice.
- Understanding parental and healthcare system factors contributing to delayed diagnosis is crucial for intervention.
Purpose of the Study:
- To investigate the reasons behind the late presentation of severe neonatal hyperbilirubinemia cases.
- To identify gaps in healthcare practices and parental knowledge regarding neonatal jaundice management.
Main Methods:
- A questionnaire was administered to parents of 130 infants with severe jaundice admitted to a neonatal intensive care unit at or after 6 days of age.
- Data collected included delivery location, discharge examination practices, parental instructions, and prior medical advice sought.
Main Results:
- Most infants (96.2%) were born in healthcare facilities, yet 79.2% lacked a discharge physical examination.
- No parents received instructions on neonatal jaundice or had follow-up appointments scheduled.
- Prior medical advice often involved home phototherapy (neon lamps) or breastfeeding supplementation, with limited serum bilirubin testing (25%).
Conclusions:
- Deficiencies in discharge protocols and parental education contribute significantly to delayed diagnosis of severe neonatal jaundice.
- There is an urgent need for accessible, affordable point-of-care diagnostic tools and phototherapy units in healthcare settings.
- Improved healthcare facility practices and public health initiatives are essential to prevent severe outcomes of neonatal hyperbilirubinemia.
Abstract:
This study aimed to understand the reasons for late presentation of cases of severe neonatal hyperbilirubinaemia. We administered a questionnaire to parents of 130 infants with severe jaundice admitted to Cairo University Children's Hospital neonatal intensive care unit at age > or = 6 days over an 18-month period. Although 125 infants (96.2%) were delivered in a health care facility, no discharge physical examination was performed in 99/125 cases (79.2%). No parent was given instructions about neonatal jaundice and no follow-up appointments were scheduled. Parents of 109 infants sought medical advice prior to hospital readmission; most babies were assessed clinically, but serum bilirubin was measured in only one-quarter of cases (28/109). Medical advice included placing the infant under a neon lamp at home (87/109 cases), advice to supplement breastfeeding (75/109) and prescribed medications, including vitamins (15/109). Increasing the availability of inexpensive point-of-care diagnostic instruments and phototherapy units in health care facilities are urgently needed.
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