Root causes for late presentation of severe neonatal hyperbilirubinaemia in Egypt

I Iskander1, R Gamaleldin, M Kabbani

  • 1Department of Paediatrics, University of Cairo, Cairo, Egypt. imanisk@hotmail.com

Insights

Late presentation of severe neonatal jaundice is common, often due to a lack of discharge examinations and jaundice education. Inexpensive diagnostic tools and phototherapy are urgently needed in healthcare facilities to improve infant care.

Area of Science:

  • Neonatal Medicine
  • Pediatrics
  • Public Health

Background:

  • Severe neonatal hyperbilirubinemia (jaundice) poses significant health risks to infants.
  • Late presentation to healthcare facilities delays critical treatment for severe jaundice.
  • Understanding parental and healthcare system factors contributing to delayed diagnosis is crucial for intervention.

Purpose of the Study:

  • To investigate the reasons behind the late presentation of severe neonatal hyperbilirubinemia cases.
  • To identify gaps in healthcare practices and parental knowledge regarding neonatal jaundice management.

Main Methods:

  • A questionnaire was administered to parents of 130 infants with severe jaundice admitted to a neonatal intensive care unit at or after 6 days of age.
  • Data collected included delivery location, discharge examination practices, parental instructions, and prior medical advice sought.

Main Results:

  • Most infants (96.2%) were born in healthcare facilities, yet 79.2% lacked a discharge physical examination.
  • No parents received instructions on neonatal jaundice or had follow-up appointments scheduled.
  • Prior medical advice often involved home phototherapy (neon lamps) or breastfeeding supplementation, with limited serum bilirubin testing (25%).

Conclusions:

  • Deficiencies in discharge protocols and parental education contribute significantly to delayed diagnosis of severe neonatal jaundice.
  • There is an urgent need for accessible, affordable point-of-care diagnostic tools and phototherapy units in healthcare settings.
  • Improved healthcare facility practices and public health initiatives are essential to prevent severe outcomes of neonatal hyperbilirubinemia.

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