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Multimodal Protocol for Assessing Metacognition and Self-Regulation in Adults with Learning Difficulties
Published on: September 27, 2020
End of life care for people with a learning disability
Sandra Morton-Nance1, Tim Schafer
1Mid Essex Hospital Services NHS Trust, Broomfield Hospital, Chelmsford. sandra.mortonnance@meht.nhs.uk
Aim:
To explore the experiences of learning disability and district nurses caring for people with a learning disability at the end of their lives.
Method:
A small-scale semi-structured qualitative study involving interviews was carried out to explore the experiences of healthcare professionals from two specialist healthcare settings.
Findings:
Healthcare professionals felt that formal guidelines and support were needed in this complex area. The study also revealed that successful provision of palliative care for people with a learning disability requires a person-centred approach.
Conclusion:
Modifications to existing palliative care services, involving joint working, improved co-ordination and reasonable adjustments, is recommended. This aims to address any inequalities in care provision for people with a learning disability who are at the end of their lives.
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