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Cleft lip and palate in Scotland: a survey
Elinor Chalmers1, Mark Devlin, Anne Crawford
1NHS Greater Glasgow and Clyde.
The Practising Midwife
|October 23, 2012
Summary
Midwives report low confidence in supporting families with cleft lip and/or palate (CL+/-P) and providing feeding advice. Enhanced training and resources are recommended to improve care for these infants.
Area of Science:
- Healthcare
- Midwifery
- Pediatric Care
Background:
- Cleft lip and/or palate (CL+/-P) requires specialized care and support for affected infants and families.
- Midwives play a crucial role in early infant care and family support.
- Assessing current midwife knowledge and confidence is essential for targeted interventions.
Purpose of the Study:
- To evaluate midwives' knowledge and experiences concerning cleft lip and/or palate (CL+/-P).
- To determine midwives' confidence levels in supporting families and providing feeding advice for infants with CL+/-P.
- To identify specific areas where cleft teams can provide valuable input and training.
Main Methods:
- A survey questionnaire was distributed to maternity units across Scotland.
- Data was collected from returned questionnaires, yielding a 42% response rate (206 responses).
- The survey assessed experiences, knowledge, confidence, and preferred support methods.
Main Results:
- 41% of midwives had assisted in the birth of a baby with CL+/-P.
- Knowledge of CL+/-P incidence (23%) and treatment stages (33%) was limited.
- A significant majority lacked confidence in supporting families (70%) and giving feeding advice (60%).
- High demand for training (65%), small group teaching (45%), websites (50%), and literature (57%) was noted.
Conclusions:
- Midwives require enhanced education and training regarding cleft lip and/or palate (CL+/-P).
- Improved confidence in supporting families and providing feeding advice is necessary.
- Development of accessible resources, including websites and literature, is recommended to support midwives.
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