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Related Experiment Videos

Internet trials: participant experiences and perspectives.

Erin Mathieu1, Alexandra Barratt, Stacy M Carter

  • 1School of Medicine, University of Western Sydney, Campbelltown, Australia. e.mathieu@uws.edu.au

BMC Medical Research Methodology
|October 25, 2012
PubMed
Summary

Participants prefer online trials for convenience, but desire better connection. Future internet-based research should balance flexibility with support to enhance participant experience and engagement.

Related Experiment Videos

Area of Science:

  • Digital Health
  • Clinical Research Methodology
  • Patient Experience

Background:

  • Internet-based randomized controlled trials (RCTs) are growing, offering potential for increased equity, generalizability, and cost reduction.
  • Limited understanding exists regarding participant attitudes and experiences in online trials compared to traditional methods.

Purpose of the Study:

  • To explore participant experiences and perspectives in an Internet-based RCT.
  • To assess attitudes towards online medical research and future participation intentions.

Main Methods:

  • An online survey was distributed to all English-speaking participants of a completed Internet RCT.
  • The survey collected data on participant motivations, experiences, and preferences for online research.

Main Results:

  • A 33% response rate (416 participants) was achieved.
  • Key motivations included personal interest, ease of participation, and altruism.
  • Participants valued the flexibility and convenience of online trials but noted a lack of connectedness and understanding as a disadvantage.
  • 69% preferred future participation in Internet-based research.

Conclusions:

  • Participants favor Internet-based trials for their convenience and flexibility.
  • Addressing the trade-off between convenience and connectedness is crucial for improving acceptability.
  • Strategies enhancing support and understanding in online trials are recommended.