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Updated: May 17, 2026
05:54
Stereo-Electro-Encephalo-Graphy (SEEG) With Robotic Assistance in the Presurgical Evaluation of Medical Refractory Epilepsy: A Technical Note
Published on: June 13, 2016
Are we discussing SUDEP?--A retrospective case note analysis.
Seizure
|October 27, 2012
Summary
Discussion of sudden unexplained death in epilepsy (SUDEP) risk is rarely documented in epilepsy patient records. Documented discussions were more common in patients with generalized tonic-clonic seizures, indicating a focus on modifiable risk factors.
Area of Science:
- Neurology
- Epilepsy Research
- Clinical Practice Evaluation
Background:
- Sudden unexplained death in epilepsy (SUDEP) is an uncommon but significant concern in epilepsy management.
- Clinical practice regarding SUDEP risk discussion varies, despite guidelines recommending essential information sharing.
- Previous studies indicate inconsistent approaches to discussing SUDEP risk with patients.
Purpose of the Study:
- To evaluate the documentation of SUDEP risk discussions in epilepsy patient records.
- To determine if documented SUDEP discussions correlate with identified SUDEP risk factors.
Main Methods:
- A retrospective review of clinical case notes was conducted.
- The study included patients with a confirmed epilepsy diagnosis attending clinic between January 1, 2009, and June 30, 2009.
Main Results:
- Only 4% (14/345) of cases showed documented discussions about SUDEP.
- Patients with ongoing generalized tonic-clonic seizures were statistically more likely to have SUDEP discussions documented.
- A trend suggested that non-compliant patients were also more likely to have SUDEP risk discussed.
Conclusions:
- Documented SUDEP discussions primarily occurred in patients with potentially modifiable risk factors.
- The majority of epilepsy cases reviewed lacked documented evidence of SUDEP risk being discussed.
- Current clinical practice appears to under-document SUDEP risk communication, despite its importance.
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