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E-consultation for DSD: a global platform for access to expert advice.
Stenvert L S Drop1, Pierre-Yves Mure, Dan Wood
1Division of Pediatric Endocrinology, Department of Pediatrics, Sophia Children's Hospital, ErasmusMC, Rotterdam, The Netherlands. S.Drop@chello.nl
Journal of Pediatric Urology
|October 31, 2012
Summary
Electronic consultations (e-consultations) enhance clinician communication and are vital for managing rare diseases through expert networks. Developing secure e-consultation services for the international Disorders of Sex Development (DSD) community will improve global access to expert opinions.
Area of Science:
- Medical Informatics
- Telemedicine
- Rare Diseases
Background:
- Electronic consultations (e-consultations) facilitate patient-doctor and inter-clinician communication.
- Telehealth systems are evolving for remote diagnosis, management, and professional education.
- Rare disease management is increasingly network-based, highlighting the need for advanced communication tools.
Purpose of the Study:
- To explore the potential of e-consultation systems in managing rare diseases.
- To propose the development of a secure, international e-consultation service for the Disorders of Sex Development (DSD) community.
- To enhance global access to expert opinions and foster interdisciplinary collaboration in DSD care.
Main Methods:
- Literature review on current e-consultation and telehealth applications.
- Analysis of existing communication challenges within the DSD community.
- Proposal for a steering committee to address practical, legal, and cultural aspects of e-consultation implementation.
Main Results:
- E-consultation is a valuable tool for inter-clinician communication, extending beyond patient-doctor interactions.
- Existing telehealth systems support diagnosis, management, and education.
- A robust e-consultation service is timely for the international DSD community to extend current resources.
Conclusions:
- E-consultation systems are crucial for the future management of rare diseases within expert networks.
- Developing a secure international e-consultation service for DSD is recommended.
- Such a service will broaden healthcare access and facilitate global discussion among DSD experts and patients.
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