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The use of focus groups to characterize symptoms in persons with multiple sclerosis
Pamela K Newland1, Florian P Thomas, Marguerite Riley
1National Institute of Health, National Institute of Nursing Research, USA. pnewlan@siue.edu
Abstract:
Multiple sclerosis is a chronic neurological disease with a myriad of symptoms. Because most work has been quantitative, it is important to capture symptoms as described by patients who experience them, using a qualitative approach. The purpose of our study was to describe and identify symptoms, with emphasis on co-occurrence, using focus groups. Three focus groups were conducted (N = 16) with relapsing-remitting multiple sclerosis patients. Common symptoms, described as both singular and co-occurring, were problems with balance, cognition, vision, and heat intolerance. These findings augment past characterizations of symptoms experienced in persons with relapsing-remitting multiple sclerosis and provide evidence for future studies.
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