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J W D de Jong, J L P Ekkerink, I Touma

    Tijdschrift Voor Gerontologie En Geriatrie
    |December 4, 2012
    PubMed
    Summary
    This summary is machine-generated.

    This study found that 12% of dementia patients in Dutch nursing homes are in the final phase of dementia. Characterizing these patients is crucial for improving care and future research.

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    Area of Science:

    • Gerontology
    • Neurology
    • Dementia Care

    Background:

    • Limited research exists on the final phase of dementia, with a lack of standardized terminology and definitions.
    • Existing assessment scales are often ineffective for monitoring patients in the final stages of dementia due to ceiling or floor effects.

    Purpose of the Study:

    • To determine the prevalence of the final phase of dementia in a Dutch nursing home population.
    • To describe the characteristics of dementia patients in the final phase of dementia.
    • To identify treatment aspects and advance directives in this patient group.

    Main Methods:

    • Utilized Stage 7 of the Global Deterioration Scale to operationally define the final phase of dementia.
    • Assessed 210 nursing home patients with dementia admitted to psychogeriatric wards.

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  • Employed a self-constructed assessment scale and registered treatment details and advance directives.
  • Main Results:

    • Twelve percent (26 out of 210) of dementia patients met the criteria for the final phase of dementia.
    • Significant variability was observed in the characteristics of patients identified in the final phase.
    • Data on treatment aspects and advance directives were collected for this cohort.

    Conclusions:

    • The final phase of dementia affects a notable proportion of nursing home residents.
    • Further research is needed to better understand and manage the complexities of the final phase of dementia.
    • This study provides a foundation for future investigations into end-stage dementia care.