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Published on: February 16, 2011
The needs experienced by individuals and their loved ones following a traumatic brain injury
Hélène Lefebvre1, Marie Josée Levert
1Faculty of Nursing, Université de Montréal, Montreal, Quebec, Canada. helene.lefebvre@umontreal.ca
Abstract:
Traumatic brain injury (TBI) is an important public health concern that presents real challenges for health care systems throughout the world. Through an international partnership between Canadian and French researchers, a vast qualitative study aimed to explore the needs of individuals with TBIs and their loved ones throughout the continuum of care and services. The study was first conducted in 3 regions of Quebec (Canada) and subsequently replicated in 3 regions of France. Overall, the data were collected from focus groups with 150 participants: individuals with TBIs, their loved ones, and health care professionals. Despite regional differences, the results demonstrate participants' very similar perceptions regarding the needs such as information, support, and a collaborative relationship with health care professionals experienced by individuals with TBIs and their loved ones. These needs change throughout the stages of care. The fulfillment of these needs play a determining role throughout the adaptation process of individuals with TBIs and their loved ones. Health care professionals must adopt a personalized approach to respond to needs related to the evolution of information, support, and relationships.
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