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Published on: September 22, 2023
[Technology-dependent children: the maternal care experience].
Aline Cristiane Cavicchioli Okido1, Tainá Maués Pelúcio Pizzignacco, Maria Cândida de Carvalho Furtado
1Departamento de Enfermagem Materno Infantil e Saúde Pública, Universidade de São Paulo, Ribeirão Preto, Brasil.
Mothers caring for technology-dependent children face challenges seeking explanations and navigating healthcare services. They rely on support networks and family for their child's care and family's well-being.
Area of Science:
- Pediatric Nursing
- Maternal Health
- Qualitative Research Methods
Background:
- Caring for a technology-dependent child presents unique challenges for mothers.
- Understanding the maternal experience is crucial for improving care.
- Existing research may not fully capture the lived experiences of these mothers.
Observation:
- This study employed an ethnographic case study approach.
- Data were collected using genograms, ecomaps, open interviews, and observations.
- Analysis focused on three key themes: searching for causes, hospital discharge, and support networks.
Findings:
- Mothers expressed a need for explanations regarding their child's condition.
- Experiences with healthcare services often involved distrust, insecurity, and dissatisfaction.
- Mothers actively organized care, prepared their homes, and utilized support networks.
Implications:
- Findings highlight the need for improved communication and support from healthcare providers.
- Strengthening formal and informal support systems is essential for these families.
- Further research should explore interventions to alleviate maternal stress and enhance child care outcomes.
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