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[Involving patients in research]
S Kirschning1, V Pimmer, J Matzat
1Bereich Reha-Wissenschaften Geschäftsbereich Sozialmedizin und Rehabilitation, Deutsche Rentenversicherung, Bund 10704, Berlin. Silke.Kirschning@drv-bund.de
Die Rehabilitation
|December 14, 2012
Summary
This study introduces concepts for patient participation in rehabilitation research, developing a stage model for integrating patient input into research design and practice. It aims to enhance democratic goals through active patient involvement in healthcare research.
Area of Science:
- Rehabilitation research
- Health services research
- Patient engagement
Context:
- Growing emphasis on patient-centered care and democratic participation in healthcare.
- Need for structured approaches to involve patients in research processes.
- Limited established frameworks for participatory rehabilitation research.
Purpose:
- To define essential concepts for participatory rehabilitation research.
- To develop a stage model for designing and documenting patient participation.
- To provide recommendations for integrating patients into research.
Summary:
- Based on workshops with researchers and patients, and literature review, this paper outlines key concepts for participatory rehabilitation research.
- A stage model is presented to guide the design and documentation of patient involvement.
- Recommendations are offered for practical implementation, alongside future research questions.
Impact:
- Facilitates greater patient involvement in shaping rehabilitation research.
- Promotes a more democratic and patient-centered approach to scientific inquiry.
- Provides a practical framework to guide future participatory research initiatives.
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