Cystic fibrosis-related diabetes in older adolescents: parental support and self-management
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Published on: July 5, 2022
Carol Dashiff1, Julie Suzuki-Crumly, Beverly Kracke
1School of Nursing, University of Alabama at Birmingham, Birmingham, Alabama, USA. carol.dashiff@me.com
Purpose:
The purpose of this study was to describe the experience of cystic fibrosis-related diabetes (CFRD), parental support of adolescent self-management, and the relationship of parental autonomy support with disease self-management.
Design And Methods:
Semi-structured interviews and questionnaires were employed in a study conducted with 10 adolescents and their parents.
Results:
Parents and adolescents lacked confidence to manage CFRD. Mothers' autonomy support was associated with adolescents' CFRD competence and cystic fibrosis self-care. Fathers' autonomy support was associated with mothers' reports of adolescent cystic fibrosis self-care.
Practice Implications:
Education about CFRD management and support of adolescent autonomy in disease management is needed.
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