Improvement of surveillance of hemophilia treatment through ICTs

Hemophilia, in addition of being a chronic disease, is also a rare disease, and as such, quite expensive for the National Health Service (NHS) due to the cost associated with the drugs used in treatments (Clotting Factor Concentrate - CFC). On the other hand, due to the specific characteristics of this type of disorder, it is necessary to ensure that data generated during the treatments are quickly communicated to the clinicians responsible for monitoring those patients. As such, an effective management of this disease, with maximum safety for patients, involves not only an efficient information management process, but also the coordination and management of all the associated resources. This article aims to present one specific component of a technological solution that can help in coordinate actions of patients, physicians and nurses, as well as improve the surveillance of hemophilia treatment, within a specific Comprehensive Hemophilia Diagnostic and Treatment Center (HTC).