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A New Single Chamber Implantable Defibrillator with Atrial Sensing: A Practical Demonstration of Sensing and Ease of Implantation
Published on: February 28, 2012
Patient perceptions, physician communication, and the implantable cardioverter-defibrillator
Paul J Hauptman1, John T Chibnall, Camelia Guild
1Departments of Medicine, Saint Louis University School ofMedicine, St Louis, MO 63110, USA. hauptmpj@slu.edu
Insights
Patients often lack information about implantable cardioverter-defibrillators (ICDs), particularly regarding long-term risks and quality-of-life impacts. Improved physician communication is crucial for informed decision-making and patient well-being.
Area of Science:
- Cardiology
- Medical Communication
- Patient Education
Background:
- Implantable cardioverter-defibrillators (ICDs) are critical for managing chronic ventricular dysfunction.
- Effective patient-physician communication is essential for treatment decisions and patient outcomes.
Purpose of the Study:
- To evaluate patient-physician communication during the decision-making process for ICD implantation.
- To identify communication gaps regarding ICDs, including risks and quality-of-life considerations.
Main Methods:
- A mixed-methods study involving 41 patients with ICDs and 11 cardiologists.
- Data collection through patient focus groups and standardized patient interviews across three metropolitan areas.
Main Results:
- Most patients (33/41) could not recall discussions on ICD complications.
- Patients reported feeling only moderately informed (mean score 5.7/10) about the procedure.
- Cardiologists frequently omitted or minimized discussions on quality-of-life issues and psychological risks associated with ICDs.
Conclusions:
- Patient-physician communication regarding ICDs is often inadequate, with significant omissions of psychological and long-term risks.
- Enhanced communication training for cardiologists is recommended to improve informed decision-making and mitigate negative impacts on patient quality of life.
Importance:
Implantable cardioverter-defibrillators (ICDs) have changed the way in which patients with chronic ventricular dysfunction are evaluated and treated.
Objective:
To examine patient-physician communication at the time the decision is made to implant an ICD.
Design, Setting, And Participants:
Forty-one patients with ICDs and 11 cardiologists were recruited by a national marketing research company for a study comprising patient focus groups and standardized patient interviews in 3 different metropolitan areas.
Interventions:
Eight patient focus groups and (separately) 22 standardized patient interviews with cardiologists.
Main Outcome Measures:
Patient focus group findings and the results of standardized patient interviews (each cardiologist interviewed 2 patients).
Results:
The mean (SD) patient age was 61.4 (14.7) years; 21 were female. Thirty-three patients could not recall a discussion about periprocedural or long-term complications. On a scale of 1 to 10, the mean (SD) rating of the degree to which patients felt informed before the implant procedure was 5.7 (3.2) (1 indicates "not at all informed," and 10 indicates "I had all the information I needed or wanted"). The mean (SD) estimated number of patients out of 100 who would be saved by the ICD was 87.9 (20.1). A negative perception on body image and lifestyle was prevalent. Across 22 standardized patient interviews, cardiologists frequently (in >17 of 22 of interviews) did not address or minimized or denied quality-of-life issues and long-term consequences of ICD placement, including the risk for depression, anxiety, and inappropriate delivery of shock or device advisory. In 15 of 22 of the standardized patient interviews, cardiologists used unexplained medical terms or jargon.
Conclusions And Relevance:
Patient-physician communication about ICDs is characterized by unclear representation and omission of information to patients, with notable lack of attention to psychological and long-term risks. Training of cardiologists on information exchange with patients may promote informed decision making and preempt threats to patient quality of life.
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