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Related Experiment Video

Updated: May 13, 2026

Implementation of a Real-Time Psychosis Risk Detection and Alerting System Based on Electronic Health Records using CogStack

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Published on: May 15, 2020

Personalised risk communication for informed decision making about taking screening tests.

Adrian G K Edwards¹, Gurudutt Naik, Harry Ahmed

¹Cochrane Institute of Primary Care and Public Health, School ofMedicine, Cardiff University, Cardiff, UK. edwardsag@cardiff.ac.uk.

The Cochrane Database of Systematic Reviews

|March 2, 2013

Summary

Personalized risk communication significantly enhances informed decision-making for screening tests, improving patient involvement in healthcare. While it boosts knowledge, its effect on increasing screening uptake is less clear and requires further investigation.

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Area of Science:

Health Services Research
Decision Science
Evidence-Based Medicine

Background:

Increasing patient involvement in healthcare decisions is a key trend.
Screening programs aim for informed decision-making, balancing benefits and risks.
Personalized risk estimates are effective tools for risk communication.

Purpose of the Study:

To evaluate the impact of personalized risk communication on informed decision-making for screening tests.
To assess components contributing to informed decisions in screening.

Main Methods:

Systematic review of randomized controlled trials (RCTs) involving personalized risk communication in screening.
Searched multiple databases (CENTRAL, MEDLINE, EMBASE, CINAHL, PsycINFO) from 1985 to 2012.
Independent data extraction and risk of bias assessment by two authors; meta-analysis used.

Main Results:

Strong evidence from 3 low-risk-of-bias studies shows personalized risk communication enhances informed decision-making (45.2% informed vs. 20.2% with generic information).
Personalized risk communication significantly increases knowledge; trends towards more accurate risk perception were observed but with poor quality evidence.
Low-quality evidence suggests a small increase in screening test uptake (OR 1.15), but its association with informed choices is unclear.

Conclusions:

Personalized risk estimates in communication interventions strongly enhance informed choices in screening programs.
Evidence for increased screening uptake is weak, and its link to informed choices is uncertain.
Results are largely driven by mammography and colorectal cancer screening; caution is advised when generalizing to other clinical areas.