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Updated: May 13, 2026

Assessment of Dependence in Activities of Daily Living Among Older Patients in an Acute Care Unit
Published on: September 30, 2020
[Suffering assessment in the advanced dementia].
Gema Costa Requena1, M Carmen Espinosa Val, Ramón Cristófol Allue
1Servicio de Psiquiatría, Hospital Universitari Vall d'Hebron, CIBERSAM, Universitat Autònoma de Barcelona, Barcelona, España. gcosta@vhebron.net
In advanced dementia, pneumonia and malnutrition are key indicators of patient suffering. Caregiver distress did not correlate with patient suffering, suggesting distinct assessment needs.
Area of Science:
- Gerontology
- Palliative Care
- Dementia Research
Context:
- End-stage dementia presents significant suffering for patients.
- Medical comorbidities are prevalent and contribute to patient distress.
- Understanding patient suffering is crucial for effective palliative care.
Purpose:
- To investigate the relationship between specific symptoms and patient suffering in advanced dementia.
- To explore the correlation between patient suffering and caregiver psychological distress and burden.
- To identify reliable indicators of suffering in end-stage dementia patients.
Summary:
- Pneumonia and malnutrition were significantly associated with higher patient suffering scores (MSSE) in advanced dementia.
- No significant correlation was found between patient suffering and caregiver psychological distress (GHQ-28) or burden (Zarit scale).
- This suggests that patient suffering in advanced dementia may not be directly reflected in caregiver-reported distress or burden.
Impact:
- Highlights specific clinical indicators (pneumonia, malnutrition) for assessing suffering in advanced dementia.
- Suggests that caregiver burden and psychological distress are independent of the patient's suffering level.
- Informs clinical practice by emphasizing the need for direct patient symptom assessment over caregiver-reported burden for suffering evaluation.
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