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Updated: May 13, 2026
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Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
Published on: April 12, 2021
Opportunities for shared decision making in kidney transplantation
E J Gordon1, Z Butt, S E Jensen
1Center for Healthcare Studies, Northwestern University Feinberg School of Medicine, Chicago, IL, USA. e-gordon@northwestern.edu
Summary
Shared decision making (SDM) is crucial for patient-centered care but understudied in kidney transplantation. This paper explores SDM
Area of Science:
- Transplantation Medicine
- Health Services Research
- Patient-Centered Care
Background:
- Shared decision making (SDM) is increasingly advocated in healthcare for patient-centered care.
- SDM has been minimally explored within solid organ transplantation contexts.
- Kidney transplantation presents unique challenges to implementing SDM.
Purpose of the Study:
- To describe the application of SDM in the kidney transplantation setting.
- To identify barriers and opportunities for SDM in kidney transplantation.
- To propose strategies for facilitating SDM in kidney transplantation.
Main Methods:
- Review of literature and clinical practice in kidney transplantation.
- Analysis of distinctive features of kidney transplantation impacting SDM.
- Proposal of strategies to overcome identified obstacles.
Main Results:
- Kidney transplantation involves fragmented patient-provider relationships and time-sensitive organ offers.
- Transplant providers face dual roles as organ guardians and patient advocates.
- Patient factors like cognitive status and literacy can impede SDM.
Conclusions:
- Despite challenges, SDM is feasible and should be encouraged in kidney transplantation.
- Reorganization of clinical care, enhanced communication, and education are key facilitators.
- Implementing SDM can improve patient engagement and outcomes in kidney transplantation.
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