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Living with heart failure without realising: a qualitative patient study
Lena Andersson1, Irene Eriksson, Lena Nordgren
1Centre for Clinical Research, Sörmland, Uppsala University, Sweden. lena.el.andersson@dll.se
People with heart failure often lack diagnosis information and support from primary healthcare. This can lead to self-management of symptoms and potential health difficulties.
Area of Science:
- Cardiology
- Primary Health Care
- Patient Experience
Background:
- Heart failure presents a significant challenge in Swedish primary healthcare.
- Limited understanding exists regarding patient experiences of primary healthcare support for heart failure.
Purpose of the Study:
- To investigate how individuals with heart failure perceive support within primary healthcare settings.
- To explore the information and care needs of heart failure patients in primary care.
Main Methods:
- Qualitative content analysis was employed, following Graneheim and Lundman (2004).
- Semi-structured interviews were conducted with ten participants (five men, five women) aged between 53 and 82 years.
Main Results:
- Participants reported receiving inadequate information about their heart failure diagnosis and its causes.
- Many believed their symptoms were a normal part of aging, not indicative of a serious condition.
- Patients primarily sought support for practical daily living needs, not illness management.
Conclusions:
- Primary healthcare may inadvertently neglect individuals with heart failure, compelling them to develop independent symptom management strategies.
- Insufficient patient information risks the development of personal, potentially inaccurate, health explanations, hindering effective condition management.
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